I want to get back to "Simple"

One of the reasons I left corporate America, moved away from the windy city and embarked this new chapter in a small midwestern town was to simplify.

I had visions of writing in my journal more, playing with the kids outdoors, baking with fresh foods not boxed foods, learning about birds, reading books, scrap booking maybe even making soaps. I know, the soap dream may be a little ambitious, but my approach was to take it easy, slow down, care for myself so that I can care for my children.

It's been 20 months since we have moved. In the beginning, I did slow down. It was like I was on vacation. We rode our bikes everywhere, spent many morning hours at the beach and afternoon hours napping. I managed the home easily with simple lists that I would write up that would remind me which days I needed to dust, clean bathrooms, floors, laundry. For some reason I was able to manage all of my responsibilities and my life was happy.

I am not sure what happened though. At what point did it all go awry? When did I stop making lists? When did the laundry pile up to the ceiling? When did my calendar go from clean white boxes to scribbles, arrows and abbreviations that I can't recall and people's birthdays that I still forget to acknowledge? When did I go from feeling like my feet were strong to feeling weak in the knees and a strong desire to sleep in even though my children wake with the sun? Why do I make plans to do all these wonderful activities then dread the days and minutes leading up to them and then resent the moments following each appointment?

It all started last night, my realization that this wasn't the life I signed up for. Perhaps this isn't my first ah-ha moment at realizing the dysfunctions in my life and it certainly will not be my final epiphany either. Sienna, my first grader's spring break started this week. Feeling like there is nothing that my daughter enjoys other than her devotion to her Nintendo DS, I made the decision to do something special with her in hopes to draw her attention away from her DS. We were going on a date, a mom and daughter date. We would get our nails done then go out to dinner together, just she and me.

When I mentioned my idea to her, at first, she became angry. Why? I don't know. I have no idea. So, I just dropped the idea and decided that we would just stay at home - again! Oh well, after all, I have mounds of laundry to tend to.

Then, later in the afternoon, she walked up to me, hugged me and asked if we were going on our date. I said sure! I wanted to grab my keys and leave at that instant, happily wanting to bond with my little girl. We waiting for my husband to get home and the second he pulled in the drive, off we went. I realize that Sienna gets stirred up if I talk too much, and when I am excited, I tend to chatter on and on, so on the drive, I tried to distant myself from her and listen to the radio softly. The sun was glowing and the spring birds were dancing circles around our van as we drove past the fields on a country road into town. Not sure what happened in the back seat, but for some reason, Sienna instantly became demanding and had her angry eyes on. We had a heart to heart and then she said she was grumpy but didn't know why. That seems to be a running theme in her life these days. Mine too.

We pulled up to the nail salon, she walked up to the window, smashing her face into the window. I opened the door for her, warned her that the smells would be strong and then tried to distract her by asking her what color she was going to pick for her nails. She instantly told me she had changed her mind and decided that she DID want a pedicure too. Originally she was afraid of sticking her "feet in boiling hot water." But, when she spotted the fancy leather chairs and colored glass foot tubs, she experienced the powerful temptation of a glorious pedicure. A temptation that will revisit her as she continues her life journey past adolescence and into womanhood. She selected glittery polishes. I selected a basic dark rose color. We both sat in the chairs, quietly smiling and enjoying the sights, sounds, smells and the vibrations coming from our massage chairs. As we sat comfortably on our pedicure thrones, the asian ladies doing our toes just kept giggling at my daughter's expressions. It was one of those motherhood moments that was priceless to share with anyone who witnessed it.

Almost two hours of pampering, and $80 later, we slipped on our shoes and coats and headed to Pizza Hut where we would enjoy a free pizza Sienna earned from her Book It Reading program. As we were waiting for a table, there was a group of young girls also waiting for a table. They were a group of fifth graders we recognized from her school. It isn't like she flinched when she saw them, but she did change her demeanor in a flash. She started talking like a baby, tried sitting in the high chair that was next to us. She jumped up and down, she pulled on me and in trying to help her I compassionately told her that I understood that she was nervous. I suggested she stand like a lady who just had her nails done and be proud and happy to be on a girls night out with her mom. But, she couldn't hear a word I said because she would jet out her jaw and pout out her lips and whine like she was a toddler not getting her way. I asked her if we should just leave and she shook her head saying "no no no no no no!" as if she was having a panic attack or a nightmare. In hindsight, I realize I should have left at this point.

But, the hostess redirected us, handed her some crayons and walked us to our table. My daughter insisted that I sit with her on her side of the booth. I agreed and at first we enjoyed playing some of the games on the back of the paper placemat. Then, the group of girls walked by our table and were seated close to us. Sienna instantly jetted her jaw out again and speak in baby language, while banging her crayons. Again, I warned her to act appropriately or else we would need to leave the restaurant.

Was I too hard on her? At what point do you allow your children to be just children, faulty and quirky and when do you do what ever you can to help them to conform in attempt to help them?

She shut down. She tried melting down to the floor, I sternly told her to sit up, bottom on the seat, feet on the floor. She obeyed but still managed laying down on the booth seat. I decided to move to the other side of the booth, sitting across from her. She acted like I rejected her and went into full vicim mode on the verge of a tearful pout.

This was a familiar experience I used to have with my own mother. I was still playing the mother role then, and she would act out like Sienna. So many scenes were caused with her. Too many public embarrassment moments to mention or even to remember. I do recall the big ones, like at my highschool play, my graduations both from high school and college, my wedding, my pregnancy and delivery with my first born... When I was a child, I was the mother to my mother.

She would give the same looks to me when I would try to set boundaries with her. Such a life that I am more than willing to leave in the past yet still creeps up when I least expect it and least need to be reminded of it.

Anyhow, the pizza arrived and I found myself catching the stares of the people around us. Trying to not accept their judgements, although they did consume me in the moment and I felt as though I was an overstrict mean, terrible mother, not allowing my child to just be a child from some glares from fellow diners. From the other glares, I felt the conviction of not being strict enough and allowing my child of getting away with poor behavior. Public opinion on my parenting is a never ending never winning jury so I decided to take a recess, box up the pizza, tip the waitress and put my daughter's coat on her since she was unable to do it herself - at age seven. As she barked and made mild puppy noises, we exited from the restaurant and were safe from a possible scene, or did we make a scene? I can never tell anymore. The lines are fuzzy. All I know is that when the door closed behind us, the experience was also behind us. Finally. A nice moment to be shared between a mother and daughter in hopes of laughter and bonding, was now turned into an experience that finally had passed. Whew! Regretfully, whew.

We walked in the cool evening to the car, both glad for the change of scenery. Our happy toes and fingers smiling at us with each step. As we approached the van, I reached for my keys awkwardly with my left hand into my right pocket so that with my right hand I could hold on to the moment of holding Sienna's soft, tender hand. She hopped into the van and we both cheerfully buckled up. As we drove home, I told Sienna, "Thanks for going out on a date with me. I had so much fun with you!"

She replied, "Mom? Are we home yet?"

Whoa! Not expecting that tone of disrespect, I thought I would take a deep breath and use this moment as a teachable time. I told her, "If someone tells you that they had a nice time with you and then they even thank you for the time that you shared with them, you could say, "Thanks," or "Shucks, I had a good time with you too" but you don't change the subject with an angry tone. That is rude. Do you understand what I just said?"

With rolling eyes, Sienna replied a hasty "Shucks... Are we home yet?"

"Sienna, I loved spending the evening with you so much. But when you are rude like you are being right now, do you think that will make me want to plan something special like this again?"

She replied, "I said shucks, just like you told me to say." Why did I feel like I did something wrong? What just happened, I thought...

Then, she cried and screamed from the back seat of the van, "I was looking forward to this day for a long time and you ruined it for me. You made me so sad." Where did this drama come from? What is happening here?

Thankfully, we were pulling in our driveway. I opened the garage door, walked inside the house. I felt a familiar confusion, a resentment that a mom is not supposed to feel towards her beautiful little girl. I needed time to process it all. After my husband tucked her into bed, and he and I started talking about the evening, guess what the first thing my husband asked me?

"A two hour manicure and pedicure? How much did that cost?"

I used to get manis and pedis at least once a month at a spa. I used feel so lost in the mounds of confusion not to mention laundry. My life used to be more predictable, goal setting and achieving, rewarding. I used to just be a girl who fought a lot with her mother. I had stresses with being a woman in corporate America. Now, my mom has passed away. And now, my daughter has Aspergers, ADHD and Mood Disorders. I don't understand how to be a good mom to her. I fail so many times at my new role as a house wife. I fail at caring for myself like I want, like I need.

I take it a day at a time. I manage what I got. I cope through writing. Thanks for reading this long narrative.

My life as a parent is like swimming in scalding hot waters, then sometimes freezing waters. I don't even know how to detect the temperatures any more. I don't even try. At times, I even forget how to swim. At those moments, I quit kicking and I cry out to God, "Calm these waters Lord. Help me to endure. I'd ask you to help me to swim, but I would rather you just let me float right now. I am weary, wasted, wet with worry and the waters are too much for me." I glance at my earlier phases of life, I had a great suit, good form, I swam even labs, took even breaths, I was swimming and swimming. I just kept going without knowing where. Now, here I am. How did I get here? What is all this laundry doing in this water?

What Does Your Permission Slip Say?

After a long weekend of birthday celebrations that induced multiple visits and short road trips to visit extended family here and there I am thankful that it is Monday morning.

Our lives are back to normal, daughter's at school, husband's at work, my toddler - who will be three this Wednesday - is sitting here, nestled up to me, watching cartoons. We are both still in PJs lounging on the fluffy down comforter in my master bed room.

It has been a year and a half since I have left corporate America. I left a high six figure salary, my dream job. I said good-bye to my own company and brand that I built from scratch, along with the excitement and exhilaration of new business growth, client lunches and travel reward points. I still thumb through my stack of business cards as a high school quarter back peruses by the school trophy case.

I have taken on the role of being a stay at home mom as if it is a job. A job that I approached with personal goals on a weekly basis. A job, however, on a number of days I am very unqualified and lost without proper training, gifts or talents. At times I feel overwhelmed and begin to question my role as a stay at home mom. My time seems devalued by everyone; my opinion, worthless. No longer am I an expert and consultant to business owners, chief executives and managing partners in law firms, in these times, my own children don't even listen to me.

Once I was the breadwinner in the family and we focused on investing in my career vision. Now, my husband is the one whose career is thriving as he makes plans for enhancing his education, we plan on his career growth. He is the one who comes home late and attends conferences in the big cities.

Although there have been adjustments and many days that have filled my thoughts with regret and grief, today, I give myself permission to enjoy this new position in my life. God is the author of our lives, and He has already written our roles and service in His book. The entire life of my career, I relied on God's provision and timing and He blessed me and my family with success. There were times that I cried out to God to help me through the rough times. Today is no different.

He also blessed us with misfortune that changed our journey significantly. Within three months, my mother fell ill and passed away unexpectedly while my oldest daughter at age five was being diagnosed on the autism spectrum and ADHD. During this personal time of bereavement, there was no time for me to cry. Steeped deeply in deadlines and meetings with busy people, little empathy was stretched to me as a woman trying so hard to be strong and professional. My husband and I realized that we needed to adapt and change our lifestyle so that I could spend time on self care and health for both myself and my children. My five year old had many doctor and therapy appointments and my youngest who had just turned one wasn't getting the best of her mommy, only left overs from a busy, harried lifestyle.

We moved and changed our lives within a crisis moment in time. At times, I feel like our lives would have been better had we worked it all out and stayed put. It's the whole "grass is greener on the other side" motto. And in these times, I isolate myself in my own pity party. But lately, I have been feeling renewed again.

I feel the freedom of God's plan that He designed just for me and just for our family. I relax in His hands. And, I smile. I smile that I get to spend quality time with my little girls. Surely there are power struggles that beat me down stemming from the dysfunctions of autism and ADHD, but there are also cuddles and giggles that sustain me. I smile that I get to see my husband grow and develop into the man God wants him to be. I smile and breathe a deep breath of clean air from a Midwestern small town. I smile realizing that I don't have to wear uncomfortable shoes in a rushed and stalled commute to the rat race in the big city. I smile that I am who I am and I don't have to pretend to be someone I am not. I don't have to prove myself anymore. I can just be me, in the moment.

Today, I give myself permission to relish being a stay at home mom who watches Dora and enjoys yelling at Swiper with my just two days away from being a three year old little girl. I give myself permission to enjoy folding a queen size over flowing mound of clean laundry today. And, I thank God for giving me this lot of my life today.

ADHD Support

WANTED: Mothering Advice for Raising My Child with ADHD


I have a lot of mixed emotions lately about my parenting skills. I have a daughter, age 7. She has been diagnosed with PDD-NOS which is on the autism spectrum. I have done a lot of research, read a lot of books and been involved with a lot of support groups on this matter. During her last assessment, the doctor advised me to not focus on the PDD-NOS as much anymore because she wasn't exhibiting the problems that tend to follow that disorder as much as she was with the ADHD and Mood Disorders. She suggested that I get more informed on those subjects. That appointment was about 8 months ago and I haven't really done much since then as I am still trying to sort it all out!

Lately, I have been feeling very confused about being a mom. I don't feel like I got the memo that was passed out, or maybe my What to Expect books didn't come with the right chapters. I see other moms who seem so natural at raising their children. I am very hard on myself because I am educated, empathetic and feel like I have tried and given so much to my family. Yet, as much as I give, nothing seems to satisfy my family's needs.

It was during this past weekend, our pediatrician advised that we increase my daughter's medication dosage. So, we did. I am also on the same medication and need an increased dosage. We both started the medication, Vyvanse last fall. We were prescribed the lowest dosage for our weight. When we first started on it, we noticed results. But, after about three months, I realize that we need more. I hope this isn't an ongoing tolerance issue to a prescription drug, but that isn't the point of my post here, so allow me to get back on topic... Also, I have learned recently that I have also struggled with ADHD my entire life, yet it wasn't until recently in discovering my daughter's deficits that I also had ADHD. Another post for another day!

Last night, after realizing how exhausted I was from the multiple prompts that were needed to get my daughter to do a simple task like brush her teeth or get out of the tub, I realized that I needed some help. at her. Now, if you have been reading my blog, you know that I have been working oI am thinking of looking into a parent support group for ADHD or something like that.

I have talked with my daughter and have told her that we need to work together to come up with ways for her to listen and obey me so that I don't have to yell. If you have been reading my blog, you will know that I have been Scream-Free for a few months now. I am proud of myself in this accomplishment. However, I feel like my daughter will only hear me if I scream at her. And, I do NOT want to do that. I want guide her. I want her to flourish.

Can I still guide her without having to yell? Will she be able to flourish and not feel like she is broken or disabled, unable to help herself without the use of medication or being yelled at?

I really am reaching out here. I strive to be a good mommy to her, and to my youngest, who by the way in the midst of being potty trained. Wow! Talk about will power for a mom. I am rewarding her with 3 M&Ms every 30 minutes she keeps her training pants dry... Today is day 7! I will be so proud of her once we accomplish the potty scene. Moreover, I will be proud of myself. I need something to make me feel accomplished these days. I miss my professional rewards big time. Wow, I really digress. Now, I must go, it appears there has been pee spotted, but, it is NOT in the potty, only on the carpet. Must go...

I support Autism Twitter Day! Will you?

Parenting two children on the spectrum, I have felt like a klutz since my first push during labor! Since spawning my first kiddo over seven years ago, I have been on a journey of motherhood unlike any other.

Although there are no manuals that can teach any mom how to parent their special child, caring for a child with special needs - specifically, a child on the autism spectrum can be especially surreal. Every day, the needs change. From the time my children were babies I have tried to figure it all out.

Now, after endless hours of research covering a variety of syndromes and disorders, I have feared the possibility along with the reality while parsing the relative information from stacks and stacks of professional recommendations and diagnoses covering Parenting, Strong-Willed Children, Autism, Fragile X, Asperger's, PDD-NOS, ADHD, Bi-Polar Spectrum, Gifted, Sensory Integration, Sensory Disorder, etc. My husband and I have had to change our career paths and life styles and have had to learn to budget our time and money so that we won't go into debt and/or divorce over the countless recommended interventions and therapies from brushing, diets, balls, vests, blankets, swings, social games and groups, squeezy thingies, bouncy doo higgies and artsy fartsy fun. Some of these items have applied for our needs at some of the times, but all of this has been overwhelming, border line new-age-voo-doo to us to say the least!

Then, there are the teachers, family and friends and foes who tell us that there is nothing wrong with our children and that we need to just be better parents. At times, I am tricked and confused by their comments. For whatever their personal reasonings, I have had to learn to desperately grip on to that teeny tiny motherly instinct that has not yet faded away and I think I am the only one who truly knows my daughters and their core needs!

I have earned infinite invisible degrees and badges of honor as a mom to a seven- and two year old on the spectrum and God still has much more to teach me. I love my kids. And I want to help them as best as I can by understanding their needs and educating others in our family and community. I look forward to joining in on the discussions that will be shared on the inaugural Autism Twitter Day!

Can you join us?

Autism Twitter Day, Tuesday, December 16, three times throughout the day, 9:00 a.m., noon, and 8:00 p.m. PST. Prizes for young adults with autism or asperger syndrome will be given away during these twitter sessions!

Whether your immediate family has been impacted by autism or if you know someone who has, you are welcome to participate. There is never a day off for the mothers, fathers, siblings and friends who support a person with autism. Here is a chance to gain support, understanding and resources that can help you navigate your life!

Come and join in on the discussions. A variety of topics will be shared on how to best handle those curve balls that the spectrum disorder tosses in to your daily life ranging from:

family dynamics,
from the bus to the classroom,
behavior,
variety of therapies,
special diets,
social skills,
independent living,
self care and hygiene.
bullying,
IEPs,
respite,
books, toys, etc. that have helped your family.

This includes sharing links to your sites and blog posts.

Hope to see your avatar there! Sweet Tweeting! Visit Autism Family Adventures to learn more about the event and to RSVP today!

Autism Family Adventures: RSVP for Autism Twitter Day

Relax Mom, Let Your Kid Be a Kid!

While driving home from a counseling session and lunch with some girl friends, I was enjoying the fall scenery and listening to the radio all alone, at the volume I wanted! When you have two daughters with sensory disorders, especially auditory processing, most of the time, the van needs to be a quiet place, free from audio stimulation, much to my own chagrin.

Feeling free and alive, my thoughts took me back to a scene from Finding Nemo.

Remember Marlin, the scared yet determined Daddy to Nemo when he is talking to the Daddy Sea Turtle, Crush? In a panic, wide-eyed and frazzled, as he is in almost every scene, he is worried for Crush's son, Squirt who just fell out of the current into an ocean abyss. Here is how the conversation goes:

MARLIN: [gasps] Oh my goodness!

CRUSH: Whoa. Kill the motor, dude. Let us see what Squirt does flying solo.

SQUIRT: Whoa! Whoa! That was so cool! Hey dad, did you see that? Did you see me? Did you see what I did?

CRUSH: You so totally rock, Squirt! So give me some fin..noggin..

CRUSH/SQUIRT: ..dude!

This picture paints the perfect model of my current parenting world. I am Marlin, neurotic, not able to fit in and meeting only friends that aren't quite my type like Dory or the sharks. My daughter, is little Nemo, cute and spunky, with a "Lucky Fin," (a/k/a Autism and ADHD and Mood Disorders) who despite her circumstances is making friends and growing up.

It was like God was speaking to me today on my drive home. He was saying, "Kill the motor."

Remember Nemo's first day of school for Marlin? I still want my little Nemo to go and play in the toddler bouncy area - not travel with the sting ray teacher to the drop off!!! What if she can't swim like the other kids? What if she needs a sensory break?

God is telling me, "Let's see what she does on her own..."

And, so, I will. At least I will try. Good idea God. Thanks for meeting me today and speaking in my language! You rock!

Are these Jugs Real? The Legacy of the Step Child Part IV

I am not sure if I will ever really know if I have the real Crazy Jugs or not.

There are a couple of pieces, trinkets that I recognize from the three bottles, but I think the three jugs that I have in my possession are not the original Crazy Jugs that my mom and her mother created. Ironic.

I do remember specifically asking for the Crazy Jugs during one of our phone calls. It was the time when my step dad asked me if I was interested in my mother's clothes. I said that I was not, but felt guilty about it. Like I was supposed to want my mom's size 3X older lady clothes that she probably bought on the clearance rack at KMart! Does that make me a bad, selfish daughter? She was always trying to get me to share her clothes with me. She would even buy two of the same outfits so she could keep an outfit for herself and give me the same outfit for my birthday. "No, I don't think I want any of her clothes, Tom," I answered. "I would like to have my Miami diploma and her Crazy Jugs though. They are probably in some of the boxes from the garage. I am going to try to come for a visit some time this summer for a few days and help you go through those boxes. I have to find someone to watch the girls though."

Not only did I have to find someone to watch my two children, ages one and four. But I also had recently learned during this time that my four year old daughter was diagnosed with Sensory Integration, ADHD and Autism. Finding someone to care for them would be challenging. I also had my own failed business I was trying to dissolve and we were in the midst of a move, buying and selling our house! Tom never seemed too concerned for all of my issues though. He did however keep some pseudo jugs for me. I found them in special boxes in the garage later that year that he so carefully set aside for me.

It was in one of those boxes I found the three Crazy Jugs that I have now. However, just as my step father hid my mother's real gold and diamond jewelry from me and tried to trick me with all of her costume jewelry, he didn't want me to have the original Crazy Jugs. My step father probably kept them or sold them for a quarter at his garage sale.

I am still so angry towards him. I know that he is elderly and that he loved my mom very much for 15 years. He was very special to my mother. He swept my mother's heels off the floor of single-hood and was a world traveling partner to my mother. I also recognize that he added value to my life in other ways along my journey. He made the opportunity for me to travel to Europe one summer in college. I made memories that summer that will last my entire life!

He was a good guy. He once was very accomplished engineer for the city of Cincinnati. But, with the stress of losing my mom and his years of life pushing upward to 80, the dementia has started to shrivel his character and his heart I once adored. I once admired him for his advice and would seek his guidance in the areas of my career and matters of the heart. He was the warm fatherly figure that my own dad could not be for me. He was supportive and stable for both my mom and me. He's pictured in my photos with me from my first college dorm room, graduation from Miami University, my first job overlooking Michigan Avenue in Chicago, my broken hearts from all the chaps before I met Fred, my courtship and wedding with Fred and the births of my two children. He has shared an important role in some of the most significant chapters of my life.

Yet, the role that he has played since my mom passed away has been far from fatherly towards me. More like a villain and a shrewd thief.

I haven't talked to my step father since we left last Christmas time. That was the time when I first learned about my mother's will. The will only allowed me to have her jewelry and day to day belongings. The day to day belongings that he had boxed up for a garage sale to sell shortly after she passed away.

There were a few boxes that were set aside in the garage and were labeled "For Andrea." When I saw the tattered boxes, I was hopeful and dare I say, even excited. Alone in the cold smelly garage, I smiled like a child who just caught her mommy's attention after months of absence and neglect. I had hoped that my mom had branded certain items that she wanted me to have someday. I was hoping to find special items from my childhood. And when I started to unravel the items in the boxes, I admit that there were a few items that indeed took me down memory lane.

The large green Mother Goose book that my mom and I read every night before bed was in one of the boxes. That was the same book that I had resting on my knee one wintery night as I hopped into the bed and the top corner of the spine poked my upper lip. I still have the small scar underneath my nose. I can still recall my mom holding me like a rag doll as she ran frantically up and down the hallway not knowing if she should take me to the hospital.

Setting in the same box, I recognized some old oafy stuffed monkeys from my grandmother. She would bring me big stuffed monkeys she'd buy from the corner drug store just before arriving for her visits with me while my mother took weekend trips with her boy friends.

There also were photo albums. I was looking forward to spending time on those only to find out of the 20 albums, several of them were full of photos of my mother with male friends whom I didn't even know. The other albums are priceless to me - at least I think that is the way I am supposed to feel about photo albums from my childhood, right?

And, then there were a lot of other things in the boxes that I couldn't decipher. What were they? Were they garbage? And, why were these items marked just for me? Broken picture frames, papers from my mother's college days, reams of paper and notebooks from my step father's surveying business. And, at the bottom of each of these shredded, mildew-infested boxes, were droppings, maybe from rats, most likely from the demons who lurked around me while I tried to grieve and cry out to God to heal my broken tattered and wounded heart.

Needy. Control.

Needs.

Special needs? Everyone is special.

Too needy? Aren't we all?

Need a friend? But my friends are spread too thin as it is. I just moved here. Potential friends see my heavy baggage and they don't want to be friends with me. They all have their heavy burdens that they need to unload on me. So, I run away from them, withdraw into a cave. I only come out when I can leave my heavy load behind in the darkened lot that God has given me for today.

Today? Only today? Hoping for a brighter tomorrow? But when? Then what?

Oh how I wish I had more control. Control of my own life. Control of my thoughts just long enough so that I could put away the dishes without being interrupted or distracted with another task in my brain. Control over my home so that I was organized and my home was clean and tidy. Control over my temper so that I didn't explode like my kids with autism and ADHD! I wish I had control over my body so that when I cut back on calories and added additional exercise I would actually lose weight and feel some sort of reward.

Rewards. I thrive on them, just like my kids. But I can't organize our lives long enough to make a reward chart. If and when I do, I can't follow through on it. It falls off the fridge and gets thrown away. Or, my kids scribble or rip it. Or, when I try to show my kids the reward, I can't capture their attention long enough.

I could use a reward. Not in the form of stickers though. More like vacations, weekend getaways, date night, manicure or pedicure, shopping for a winter coat that I have needed for three years, someone to just call me and let me ramble without me feeling like I owe them.

Tit for tat. And that's that.

Sugar and spice and everything nice. That's what little girls are made of. Yeah, right. Whateves.

What about the effect that autism, ADHD and mood disorders have on the parents?

I think if I had a job again, it would give me structure, some form of control, self esteem. It would give me a break. It would give me adult interaction. It would just be a Band-aid. A Band-aid for this big boo boo that God is allowing me to suffer through right now.

It's back to the basics for me for today.

"Out for a Walk, Be Back at Noon"

The Legacy of a Step Child

As a follow up to my earlier post titled, Feeling Like Dirt on a Piece of $@#*, I shared about my experience from last weekend. We were visiting my dad, recently burdened with a severe disability that has put him in a wheelchair, taken his speech and is slowly taking his ability to swallow food. We joined him as he was awarded into the town's Hall of Fame for his years of service to the community. It was to be a proud moment for him and for our family however, it also marked a memorable moment in our family history when we were all gathered to notice how significant my dad's disability had become.

The discussions around the breakfast table the morning after the award ceremony were all positive and you would have thought they were all optimists however, from my perspective they were just in denial. Afraid to face the realities of what is to become. Afraid to not know or control the outcome of my father's health.

And, although I also fear those things, the most painful points I shudder from is the loss of my father, the only blood relative I have left will soon be leaving me. All I will have left are step families and in-laws.

At face value I have always gotten along with my step parents. I have considered them a blessing to my life. Both my step mom and step dad have added strength and stability to my life that I would have never had with either of my parents alone. But, as my father becomes frailer by the day, I am reminded that I am only a step child with no rights to a proper legacy.

It was just one year and a half that my mother passed away. My step father was the executor of my mother's will and although my mother and I had a tumultuous history throughout the years, it was the two years before her passing that we had become closer and more forgiving towards one another. Prior to that time however, she had done some demeaning and deranged things to her will and her assets leaving little to nothing to my girls or to me. She had left much of her assets to distant nieces and nephews to my step father's relatives. To write about this today, hurts my soul, but it is what it is and I have to learn how to not let it get the best of me and my memory of my mother.

The one item that my mother willed to me was her jewelry. However, the mourning turns even darker during a visit to, now my step father's home (I was so used to calling that place, "Mom and Tom's" to hear it just called "Tom's" place was awkward for me.) We were visiting my step dad around Christmas time. I knew this time would be especially difficult for him and since he had no family of his own, I felt it was my duty to spend some quality time with him near the holidays. I had also called him daily after my mother's passing until I knew he was stronger and had friends near by to help him. I even considered having him move closer to us so that we could look after him. He had been my step father for 13 years and I felt the God-given responsibility to look after him.

It was during this Christmas visit, ten months after my mother had passed that I first received a copy of the will. I had not gone through my mom's things because it was too painful for me yet. In addition to losing my mother, we had been told that Sienna had ADHD and Sensory Integration and I had Sarah as a permanent hip ornament, only one year of age. I also had to let my company of 10 years dissolve since I was unable to keep so many clients' demands abreast while caring for my step father while at my coma-induced mother's bed side. So, after we prepared a holiday dinner, I asked Tom if it would be OK if I looked at my mom's jewelry. Sienna and I opened the night stand drawer and saw the jewelry like a glimpse of my mom's joy sparkling a bubbly smile at us. Queen Bubbly was my mother's Red Hat Society name and it fit her to perfection. Although, the bubbly side of her was only half of her. The other side was burdened with depression and a heavy grip to the past.

More on the story of the passing of my mother, how my step father treated her will and the reality of my legacy in future posts.

Good grief

You ever have an issue that keeps coming up over and over in your mind? It's like you can't have any peace or progress until you realize what it is that is at the heart of the problem, yet you aren't even sure what the problem is exactly.

Here is one of those nagging self talk scripts that I am trying to get my hands on... I think I have it figured out, but it is like that Sudoku puzzle that you know you could solve you just can't find the time, or the right pencil or even the Sudoku puzzle itself.

I've mentioned in previous posts perhaps that I have two daughters on the spectrum. My oldest, Sienna, first grader has been diagnosed with PDD-NOS with probable Asperger's. She also has mood disorder (bi-polar spectrum) and ADHD. I have been on a roller coaster with her since she was about 2 years old, feeling like a failure, like nothing I could do for her was working. She was so 'out-of-sync' and so when I found the book, "Out of Sync Child," by Carol Kranowitz a few years ago, something finally clicked with me. I started the long journey of trying to get services and diagnosis's, let alone just basic acceptance of my concerns from my own husband and family members. Finally, after three years I started getting more understanding from family members. It took a lot of tantrums at family events for people to realize that there was any merit in what I was saying about Sienna. No one wanted to believe that such a bright and blue-eyed blonde little girl had anything wrong with her. All along, my parenting skills and credibility as a mother were weakened through every step during this three year journey.

Then, after Sienna's daycare providers really encouraged me to take the matter more seriously, I finally went privately to get medical diagnoses. In the past 18 months, we have had five professional diagnoses all pretty consistent with one another: Sensory Integration, PDD-NOS, Probable Asperger's, Mood Disorders, Bi-Polar and ADHD. In addition, yet in opposition to these medical opinions, the school's psychologist has observed, assessing Sienna at the school and discovered that Sienna doesn't show any problems at all. In fact, the school professionals claim that she is a bright and cheerful girl that perhaps "her mother is in need of counseling and parenting classes."

And, here we are a year later, and I realize, I do need therapy and parenting classes, ever since the school's assessment in fact!

Every day, I fight with my thoughts and feeling about my daughter being on the spectrum. Is she? Most of the time she is fine. We've learned to adjust. We don't do any thing that will be unpredictable or pressure her socially. So, I can't tell. I am going nuts trying to figure out if something is wrong with my daughter. If so, what exactly. And, once it is determined what, then, how will I help her?

I realize that I am thick in denial. I am also so angry. I have become hardened.

And then, a light bulb went on! It was an ah-ha moment yesterday while we took a day trip by train to Chicago. Sienna was not in her normal element. And, when she isn't in her element, her quirks are more pronounced. She acts strange, says weird things, has odd gestures. She doesn't even walk normal. When she was younger, she would act like a dog as a coping mechanism. Now, she acts like a baby to cope in difficult situations for her. She talks like a baby, wants to ride in the stroller and cuddle, just like a baby. I even made a new age appropriate 'blankie' for her so she could have her blankie in times like these. Frankly, I allow it because when she was a baby, she didn't really sit still in a stroller and didn't cuddle or talk much.

I found myself growing so angry during the train ride. I was so irritable with her. I was so mad at her for acting like this. I was mad that we couldn't do any family fun activities any more. I feel so judged by strangers everywhere we go. Most of all, I was disgusted at myself.

Why do I have to be so superficial? I have been a born again Christian for about 13 years now. I was such a strong follower before having children. I was so close to God, my heart was tender for Him. Now, I am so hardened. I don't even feel comfortable going to church, partly because our children on the spectrum have so many challenges in a church setting, but also because of the condition of my heart. I am starting to cope in unhealthy ways myself. I am drawn to cocktails to relax me and other social subtleties that are not Christian-like.

And I really do want to be that caring, loving Christian woman that I once was. I don't want to be cursing at God for giving me children who are so difficult. Feeling so inadequate for this feat, I let out a yelp of a prayer and I heard God telling me that I was in His Hands. I was just going through the valley of grief. I still am in denial. I am still in the anger phases. It is difficult to have a clear journey of grief with raising children with special needs like what Sienna has because every day is different and I will not know what challenges we will face until we are face to face with each challenge.

I have to trust God even more in the daily crises of raising my kids. More than the typical family would. And, that is a blessing. At least that is how I am seeing it in this light bulb moment!